One of the sites I love to peruse is What Kate Wore which highlights the fashion items Katherine Middleton Duchess of Cambridge wears to her engagements. They also touch on what the event is and who it may benefit. One event noted on the site was a tea at the palace to honor BBC Radio 1 Teen Hero award winners. Lily Rice was one of the teen heroes honored for her work as a wheelchair motocross (WCMX) competitor who works to get other kids access to WCMX.
Lily is 14 and has my same disease- hereditary spastic paraparesis. When she was younger and less afflicted by the disease she was a skateboarder. As her disease progressed she could no longer use a skateboard and transitioned to riding the skate parks using her wheelchair. She started with WCMX in 2016 and has been travelling for competitions since then.
In 2018 Lily became the first European female to perform a back-flip in her wheelchair- she is only the second female in the world to do so! Here is a clip of of an interview with her followed by two attempts and finally the flip- https://www.youtube.com/watch?v=xT7tjSb6VPM
Every once in a while the fear of the unknown kicks in and I worry about how life for me will change physically regarding my disease. I always reassure myself that no matter what happens I will be OK. It is much nicer to see someone with my disease, in a further progressed state who is not just OK, but a verifiable badass. Thank you Lily Rice.